Family Team News

Register for March for Babies at marchforbabies.org

Monday, August 31, 2015

A woman’s microbiome may influence her chance of giving birth early

Last week, the March of Dimes announced that investigators from the Stanford Prematurity Research Center published an important study which may help to better understand some of the factors that may play a role in premature birth.

Researchers at Stanford have been looking into how the microbiomes of women who deliver babies early are different from those who have full-term births. The microbiome is a community of microorganisms (such as bacteria) in the body. Differences in the microbiomes of individuals may help explain why some women give birth early. Microbiome differences may also explain other health issues, such as asthma and inflammatory bowel disease.
Weekly samples were taken of the bacteria from the teeth, gums, saliva, reproductive tract, and stool from 49 pregnant women. Scientists found little change in the bacterial communities in each woman, week to week at each location. But they did find that microbial communities in the reproductive tracts of women who delivered their babies too soon were different from those of women who delivered full term. Those differences were identified early in the pregnancies and continued throughout the pregnancies.
“These findings may help us screen women and identify and predict those who are more likely to have a baby born too soon,” said David Relman, MD, a professor of microbiology, immunology, and of medicine at the Stanford University School of Medicine and the lead investigator for the research center on this project.

The researchers also found that the women’s microbiomes changed immediately after they delivered their babies, and did not revert back to pre-pregnancy patterns in some cases until at least a year later. “This might explain why women with closely spaced pregnancies have a higher risk of preterm birth,” said Dr. Relman.
The March of Dimes currently has five prematurity research centers. These unique, transdisciplinary centers bring together scientists from many diverse disciplines — geneticists, molecular biologists, epidemiologists, engineers, computer scientists, and others — to work together to find answers to prevent premature birth.

Questions? Text or email them to AskUs@marchofdimes.org.

Wednesday, August 26, 2015

August 29 is Shop For A Cause!

Donate $5 and save all day!

On Saturday, August 29, 2015, Macy's will host its 10th annual Shop For A Cause, and you can join in to help raise funds for the March of Dimes. We're leading the fight against premature birth, which affects 1 out of every 10 babies born in our country and is the leading cause of death in children under 5 worldwide. Donate $5 now to be a part of the best offer of the year while supporting brilliant researchers, educational programs and community services.
Shop for back-to-school specials or other fall favorites with your Shop For A Cause savings pass, and save on regular, sale and clearance items - including the designer brands you love - throughout the store!

1. Simply make your $5 donation today.

2. Download or print the savings pass on your receipt page.

3. Bring the pass to your local Macy's store on August 29 and save all day long.

4. While you're there, don't forget to enter for your chance to win a $500 Macy's gift card.

Thank you for your donation to help more and more moms have full-term pregnancies and healthy babies.


Wednesday, August 19, 2015

Thinking about maternity leave

Have you heard that Netflix is offering unlimited paid parental leave to their employees? During their first year as new parents, Netflix employees can take as much time off as they choose while still earning their normal salary. This is really an amazing policy. If you’re working and pregnant, you probably have thought a lot about maternity leave. Over the past 30 years, the participation rate in the labor force of women with children under age 3 has risen from 34.3% in 1975 to 60.9% in 2011. Half of all mothers work during pregnancy and return to work after their baby is born. And among women who worked during their pregnancy between 2005 and 2007, 58.6% returned to work 3 months after giving birth and 72.9% returned to work 6 months after giving birth. It is important to know what options are available to you so that you can plan ahead.

Under the Family and Medical Leave Act (FMLA) employees can take time off from work without pay for pregnancy- and family-related health issues. The act provides up to 12 weeks of unpaid, job-protected leave per year. It also requires that you can keep your health insurance benefits during the leave. To qualify, you must have worked for your employer for at least 12 months, worked at least 1,250 hours during the last 12 months, and worked at a location where the company has 50 or more employees within 75 miles.

In addition to the FMLA leave, your employer may have its own maternity leave policies. Talk to your boss or someone from human resources (also called HR). Here are some questions you may want to ask:

  • Does your employer offer paid maternity leave? Some employers offer paid time off for the birth of your baby. Talk with someone from HR to find out if you have paid maternity leave.
  • Does your health insurance continue while you’re on maternity leave? If you get your health insurance through your employer, your HR person can tell you about what your insurance plan covers. You may need to change your health plan after your baby’s born to make sure he’s covered, too.
  • Does your employer offer flex time or telecommuting for when you’re ready to go back to work? For example, can you work fewer hours each week or work from home at the beginning? And then increase your hours or your time in the office little by little over a few weeks?
  • Are there other programs or services that your employer offers to new moms? If you’re breastfeeding, find out if your employer has a lactation room. This is a private space (not a bathroom) that you can use to pump breast milk. Employers with more than 50 employees must provide this space for breastfeeding moms.

Finally, choosing a child care provider that works best for you can be tough. Try to explore your options and finalize your plans before your baby arrives.  If you can organize childcare before you deliver, it will make your time at home with your baby more relaxing and enjoyable.

Monday, August 17, 2015

Breastfeeding a baby with a cleft lip or cleft palate

Breastfeeding can be challenging for any mom. But, for the mother of an infant with a cleft lip or cleft palate, it can be daunting.

In honor of World Breastfeeding Week, I am featuring a very helpful post on breastfeeding a baby with a cleft lip or cleft palate, written by our March of Dimes blogger and Lactation Counselor. Thank you Lauren, for this post filled with useful, practical tips.

A cleft lip is a birth defect in which a baby’s upper lip doesn’t form completely and has an opening. A cleft palate is a similar birth defect in a baby’s palate (roof of the mouth). A baby can be born with one or both of these defects. If your baby has a cleft lip, a cleft palate, or both, he may have trouble breastfeeding. It is normal for babies with a cleft lip to need some extra time to get started with breastfeeding. If your baby has a cleft palate, he most likely cannot feed from the breast. This is because your baby has more trouble sucking and swallowing. You can, however, still feed your baby pumped breast milk from a bottle.

Your baby’s provider can help you start good breastfeeding habits right after your baby is born. The provider may recommend:

• special nipples and bottles that can make feeding breast milk from a bottle easier.

• an obturator. This is a small plastic plate that fits into the roof of your baby’s mouth and covers the cleft opening during feeding.

Here are some helpful breastfeeding tips:

• If your baby chokes or leaks milk from his nose, the football hold position may help your baby take milk more easily. Tuck your baby under your arm, on the same side you are nursing from, like a football. He should face you, with his nose level with your nipple. Rest your arm on a pillow and support the baby’s shoulders, neck and head with your hand.

• If your baby prefers only one breast, try sliding him over to the other breast without turning him or moving him too much. If you need, use pillows for support.

• Feed your baby in a calm or darkened room. Calm surroundings can help him have fewer distractions.

• Your baby may take longer to finish feeding and may need to be burped more often (2-3 times during a feed).

• It may help to keep your baby as upright as possible during his feeding. This position will allow the milk to flow into his stomach easier, which will help prevent choking.

How breastfeeding can help your baby:

• His mouth and tongue coordination will improve, which can help his speech skills.

• His face and mouth muscles will strengthen, leading to more normal facial formation.

• If your baby chokes or leaks milk from his nose, breast milk is less irritating to the mucous membranes than formula.

• Babies with a cleft tend to have more ear infections; breast milk helps protect against these infections.

If your baby is unable to breastfeed: 

• Feed your baby with bottles and nipples specifically designed for babies with clefts. Ask your baby’s health care provider for recommendations.

If you are concerned if your baby is getting enough to eat, or if he is having trouble feeding, speak with a lactation counselor, your baby’s provider or a nurse if you are still in the hospital.

If you have any questions about feeding your child with a cleft lip or palate, email us at AskUs@marchofdimes.org.

Wednesday, August 12, 2015

Brain bleeds in babies

The younger, smaller and sicker a baby is at birth, the more likely he is to have a brain bleed, also called an intraventricular hemorrhage (IVH). If you or someone you know has a baby with a brain bleed, it can be a very scary and upsetting experience.

Bleeding in the brain is most common in the smallest of babies born prematurely (weighing less than 3 1/3 pounds). A baby born before 32 weeks of pregnancy is at the highest risk of developing a brain bleed. The tiny blood vessels in a baby’s brain are very fragile and can be injured easily. The bleeds usually occur in the first few days of life.
How are brain bleeds diagnosed?
Bleeding generally occurs near the fluid-filled spaces (ventricles) in the center of the brain. An ultrasound examination can show whether a baby has a brain bleed and how severe it is. According to MedlinePlus.gov, “all babies born before 30 weeks should have an ultrasound of the head to screen for IVH. The test is done once between 7 and 14 days of age. Babies born between 30-34 weeks may also have ultrasound screening if they have symptoms of the problem.”
Are all brain bleeds the same?

Brain bleeds usually are given a number grade (1 to 4) according to their location and size. The right and left sides of the brain are graded separately. Most brain bleeds are mild (grades 1 and 2) and resolve themselves with few lasting problems. More severe bleeds (grade 3 and 4) can cause difficulties for your baby during hospitalization as well as possible problems in the future.

What happens after your baby leaves the hospital?
Every child is unique. How well your baby will do depends on several factors. Many babies will need close monitoring by a pediatric neurologist or other specialist (such as a developmental behavioral pediatrician) during infancy and early childhood. Some children may have seizures or problems with speech, movement or learning.
If your baby is delayed in meeting his developmental milestones, he may benefit from early intervention services (EI). EI services such as speech, occupational and physical therapy may help your child make strides. Read this series to learn how to access services in your state.

Where can parents find support?
Having a baby with a brain bleed can be overwhelming. The March of Dimes online community, Share Your Story, is a place where parents can find comfort and support from other parents who have (or had) a baby in the NICU with a brain bleed. Just log on and post a comment and you will be welcomed.
You can also leave a comment here on our blog, or send a question to AskUs@marchofdimes.org where a health education specialist is ready to assist you.


 

Wednesday, August 5, 2015

DISTRICT OF COLUMBIA MARCH FOR BABIES FAMILY TEAMS THANK YOU EVENT

Host:  March of Dimes; District of Columbia March for Babies Family Teams Committee

When: Sunday, August 23rd from 1:00 PM to 3:00 PM



 
 
Please Join Us for our District of Columbia March for Babies Family Teams Thank You Event!

You are invited!  The March of Dimes and our District of Columbia Family Teams Committee (a group of mission families) invite all Washington, D.C. family teams to Palisades Spray Park to meet each other and for children to enjoy playing at the park.  The park has a spray park, playground, and other play structures!  This will be a wonderful time to meet families like you who are the heart of the March of Dimes' mission. 

This event is a way for us to say thank you for your support and dedication to the March for Dimes and for a successful 2015 March for Babies.  We will be handing out plaques to our 2015 Top 10 family teams and will have paper certificates for all other family teams.

This is a come and go as you please event.  Drinks and snacks will be provided, and kids are encouraged to attend! :-) All DC family team walkers are receiving this invitation, but please feel free to share with anyone you would like to bring with you. The more, the merrier!

Parking
There are parking spots at Palisades Spray Park.

Metro
The closest metro stop is Tenleytown on the Red Line.

Bus
The closest bus stops are N8 and N4.

We are so excited to see each of you and say thank you for a wonderful March for Babies season!  Please contact Elizabeth Ooi at eooi@marchofdimes.org or 571-257-2300 with any questions!

With Love,
March of Dimes; March for Babies Family Teams Committee

Monday, August 3, 2015

Maternal PKU

PKU or phenylketonuria is a condition in which your body can’t break down an amino acid called phenylalanine.

In the US, about 3,000 women of childbearing age have PKU. A woman with PKU can have a healthy baby but it is very important that she stay on a special diet to control her phenylalanine intake while she is pregnant. According to MotherToBaby, babies born to mothers with untreated PKU (women who are not on the special diet) are commonly born smaller, have microcephaly (an abnormally small head), intellectual disabilities, behavior problems, facial features similar to those of fetal alcohol syndrome, and have higher risks of heart defects.
Managing PKU during pregnancy

If you have PKU and are planning to get pregnant, it is very important that you talk to your health care provider. Many people with PKU now maintain their special diets throughout life. But if you have not been following your PKU diet, it is best to return to your PKU meal plan at least 3 months before you try to get pregnant.
PKU meal plans are different for everyone because people with PKU can tolerate different amounts of phenylalanine. For this reason, it is very important that you talk to health care providers who are familiar with managing PKU during pregnancy. Blood tests throughout pregnancy can help to monitor your phenylalanine levels and make sure that they are not too high. And your prenatal care provider may order ultrasounds to monitor your baby’s growth.

Will my baby have PKU?
If you have PKU, your baby has a chance to have PKU. Your baby has to inherit a mutation for PKU from both parents to have PKU. Whether or not your baby will have PKU depends on if your partner has PKU or is a PKU carrier. (A PKU carrier has one copy of the PKU mutation but does not have PKU.)

  • If you and your partner both have PKU, your baby will have PKU.
  • If you have PKU and your partner is a carrier, than there is a 50% chance your baby will have PKU and a 50% chance your baby will be a PKU carrier.
  • If you have PKU but your partner does not carry the gene change for PKU, then your baby will be a PKU carrier but will not have PKU.
If you are not sure if your partner is a PKU carrier, there are tests available that can help you find out. A genetic counselor can better help you understand your chances of passing PKU to your baby.

All babies born in the United States are tested for PKU through the newborn screening program. Babies born with PKU are immediately placed on a special diet that significantly reduces the amount of phenylalanine they consume. Babies who have PKU may never show symptoms if they are transitioned to a low-phenylalanine diet soon after birth.
Questions? Send them to AskUs@marchofdimes.org.
 
Tags: maternal PKU, newborn screening, phenylalanine, phenylketonuria, PKU